Saturday, October 31, 2009

Our Angel Earned Her Wings




Allison Danielle Zicree
May 13, 2008 - October 17, 2009


On Saturday, October 17, 2009 at 7:35pm we said goodbye to Allison and she grew her angel wings. Allison was surrounded by friends and family throughout the day who came to share their love and support and to say goodbye. We are so grateful that she was able to spend her final day on earth this way. Shaun and I are so blessed to have the support system that we do. When we we made our way to the waiting room that night, we saw that our family and friends set up camp and were right beside us every step of the way and would have stayed as long as it took for Allison to take her final breath.

She definitely fought long and hard against her disease, but it eventually grew bigger then her and stronger than the medicine used to fight it. After her second round of chemo she had 8% leukemic blasts(a 'partial' remission is 5 - 13%). The third round of chemo was no match for AML M7 and after her marrow draw on 10/15, we learned that the leukemia came back with a vegence and attacked over 95% of her little body. Her immune system was so comprised that it was unable to fight off the fever that caused her to become so sick, this coupled with the bloating(caused by cancer cells accumulating in her organs), proved to be too much. Further testing found that there were blood clots in her arteries and liver. At this point, she became so sick that she may have never been well enough to go for a bone marrow transplant.
Unfortunately, had she been in 'good' health and in a solid remission after the third round of chemo, she would have been headed to City of Hope on November 2 for her bone marrow transplant. One, single, solitary perfect match had been found for her out of the 13 million people on the National Bone Marrow Registry. This just reinforces my fight to add more people to the NBMR. I know that Allison's fight called over 2000 people to the registry, but I will continue to fight for others who need this life saving procedure. Behind each patient is a family fighting for their loved one. If you haven't already, please consider joining the registry. I was amazed to learn how simple the donation procedure really is! There are two options to give life to another, one is surgical and the other is similar to donating blood and takes only 6 hours and you're back to life as usual!

While our heart aches everyday for the loss of Allison's life and our future with her, we know that she is no longer in pain and now gets to be a fun loving, rambunctious child again running around in heaven. Our lives have been forever changed because we were blessed to be her parents and because we got to experience her love, strength, and innocence. Allison...we love you dearly and we thank you for making us better people.

Love,
Nicole & Shaun

Letters from Allison's Parents:

Dear Allison:

When you were born you changed my life forever. You showed me the beauty in the world. You became the shining light in my life. You got me through the bad days. No matter how bad my day was, it was all ok when I saw you.

You taught me to be a better man.

I will always remember all the time you were here. It was the best time in my life.

I miss the times I would start to fall asleep and you would stand up and jump up and down like a bear while saying: “HI” to wake me up and how you would sleep with your foot pressed against my back. .

I am so sorry for what you had to go through, but you went through it like no one else. Whatever life threw at you, you took it and smiled anyway.

I am so honored to be your father. You are the greatest little girl I’ve ever known.

When you passed away, a part of my heart died as well. You will always be a part of me. I hope you are falling back on clouds and laughing like you used to do in our big bed.

I miss you and I will always love you with all my heart.

Dad

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Dear Allison,

I cannot say enough about how proud I am to be your mother. Before this journey started I used to say that I felt blessed that you were a part of our life. As I started to see the impact you had on had on others and the world around you, I began to realize how blessed I was to be a part of YOUR life. I was always in awe of how you made each and every person you came into contact with feel special. You have touched the world in a way that I never knew possible. I am so grateful that I had the opportunity to see you make an impact.

You have done so much in your 17 months on this planet and you inspire me. You inspire me to be a better person and your fortitude gives me the strength to want to change the world too. You gave the fight of your life, never backing down….even at the very end, and I feel honored to have been with you every step of the way.

I will forever treasure the fun times we shared together, strolling through the market, the mall, a any other place that we could play. Hospital hallway hide and seek became one of my favorite activities and running around on the third floor bridge after dark was always a great way to burn some toddler-sized energy. Even though you had only a few clear words at the beginning of this journey – your ever growing vocabulary astounded me! I will always hold dear the late night conversations we had as you fell asleep in my arms and how the first thing you would do in the morning was pry my eye open with your tiny fingers and say “HI!”. I will always smile when I think about you giving yourself a round of applause when you did something you were proud of and when you knew we were excited for you. When you said “NO” it always made me giggle, I love the way you would shake your head and say it with such fervor. I have to admit, I sometimes asked you questions or offered you things just so I could hear you say NO, and just because it made my heart giggle too.

What a smart cookie!!! At such a young age you had a thirst for knowledge that was exceptional. I was always amazed when you learned a new word and knew how put it to good use. I so enjoyed watching you figure out how things worked, how to take them apart, and even put them back together!!! I don’t know how much you understood, but it sure looked like you know what you were doing as you turned the pages in your colorful books and put pen to paper. Your smile and laughter warms my heart every day and I thank God for every second we shared together.

I don’t always understand why life takes the turns it does, but what I do know is that you changed my heart and my soul and made me a stronger, more faithful woman. Because of your strength I know there’s nothing I can’t conquer. Thank you for being a wonderful daughter, incredible teacher, and an inspiration. I thank God everyday for giving me the chance to be your mother and for blessing my life by giving you to me as my daughter, even for a short while.

I love you with all my heart and soul, to the ends of the universe and back, and I will forever be changed because I love you.

Love,

Your Mom

Saturday, October 17, 2009

the latest info

Allison's condition has taken a turn for the worse. Her fever was not due to infection as previously thought, but was part of the leukemia disease. The cancer has affected her entire body causing her liver and spleen to become severely enlarged.

On Thursday evening she was transported to pediatric ICU at a different facility for further evalution. Several tests were run over the time we were there, which found that she has several complications.

We've now returned to her original hospital where further decisions will be made about her care. Please keep her, our family, and her care team in your thoughts and prayers.
In appreciation of your love and concern, please know that we will not be accepting visitors at this time. If you are interested in visiting the family, please contact Ricky B. at: [info removed]

With Love,
Allison's Mommy & Daddy

Friday, October 16, 2009

Donations for Allison

Tax deductable Donations for Allison can now be made through, Top of the Mountain:

Top of the Mountain Children's Disease Foundation
P.O. Box 4752
Palos Verdes Peninsula, CA 90274

Donations can also be made online by visiting: http://www.topofthemountain.org/friends_Team_Allison.html

**Please make sure to write Allison Zicree on the "Memo Line" on your check or in the info section on paypal.

Tuesday, October 13, 2009

What a week!




Thank you all for your continued thoughts and prayers for our daughter. We've had a challenging few weeks, but it looks like we may be coming out of it, slowly but surely.

The effects of Allison's third round of chemo took over last week. As expected, her white blood cell count dropped dramatically, which made her neutropenic (http://en.wikipedia.org/wiki/Neutropenic). This means that she is at a point in this cycle where she is susceptible to infections and other contagious illnesses. During her first two rounds of chemotherapy Allison managed to sail through this point in her treament, however this time the chemo was approximately 10x stronger and it's taking its toll.

Since last Tuesday we have been fighting a fever that has stayed between 101°F and 104.5°F, neither medication nor cooling measures cooled her for very long. This has been coupled with nausea and a severe loss in appetite. Allison has been unable to rest comfortably(day or night) and has had a difficult time moving on her own, so she and mom are totally sleep deprived. Along with her fever, she is experiencing edema/water retenion all over her body. The majority of the swelling is in her belly and that is due in part to low protein levels. She is receiving treatment to reduce the swelling, but it is a slow process. She has required platelet transfusions daily and has had a few blood transfusions this week as well.

Her fever stayed close to 100°F for most of the day, and today was the first time she has nibbled anything in about a week - we were so excited! She was chatty for a little bit, watched some Sesame Street, and managed to pull herself into a sitting position at one point. These are the things that give us little glimpses of our old Allison and hope that recovery from this round of chemo is just around the corner. Please keep our little girl in your thoughts as she continues to push through this phase.

Tuesday, September 15, 2009

Round 3 Begins



After getting to spend some time at home with her toys and her pet kitty cat, Allison has returned to the hospital for round 3 of chemo. We anticipated this visit, so it did not come as a surprise when we got the call from her doctor.

Because she is in a partial remission, Allison requires more treatment to prepare her for a future bone marrow transplant. In order to have the best outcome possible, she will need to be in a full remission for the transplant to take place. A bone marrow match for Allison has not yet been found, so the extensive search continues. We recently found out that she has a unique antigen(http://en.wikipedia.org/wiki/Antigen) which makes it slightly more difficult to find an exact match for her. We know the match is out there...somewhere!

While this treatment plan will last only 4 days(4 hours each day) it will be 8-10 times stronger than her previous treatments. At this point we are not sure of how she will react to this new dosage, but we hope and pray that she will suprise her nurses and doctor once again.

Allison is in fantastic spirits today! Let's hope this continues!

Thank you all for your continued thoughts and prayers for Allison - I know they're working!

Saturday, September 5, 2009

What a great success!

Wow! we had such a wonderful time at the benefit dinner last week. It was so nice to see friends and family, and meet so many new friends! Shaun and I were so touched by the love, support, and generosity of all who attended. Thank you for being there to support us. There were even a few customers who popped in just for dinner and were met with a very large crowd - we're glad you joined us!

We would like to extend a special thank you to Leah Ventimiglia(and her family) for all of her hard work in putting this event together. I know that planning this dinner took up a lot of her time, and we are so appreciative. Big thanks are also due to Ron & Julie Horn of Buchanan Arms restaurant for hosting this dinner. The food was INCREDIBLE(as always!) and your staff was so wonderful - thank you!

We were in awe of all the amazing items donated for the Silent Auction and Raffle. Thank you to all those who donated and helped make this such a success. Plee see the list below! There were some items that came in at the last minute, and we do not have the names of those donors. If you are one of them, please let us know!!!

Silent Auction/Raffle Donors:

Bari & Neil Bucknam
Mark Burg - CBS/Two and Half Men
Vanessa Burrows
Coors
Cynthia
Suzanne Duffy
Katie DuPrey
Ron & Julie Horn - Buchanan Arms
Anissa Iverson
Kevin Kleinrock - Big Vision Entertainment
Laura Lewis
Linkin Park
Napoleon Perdis Cosmetics
Old Navy
Susan Olmos
Maria Otero - Cookie Lee
Vicki Price
Marcella Prystupa
Ana Reyes - Anamaria Purses
Trish Shaheen
Mike & Anna Shinoda
Whole Foods - Porter Ranch
Marc Zicree
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*If you were the winner of the "Baby Basket" with the gate, please contact me at allisonzicree@gmail.com. A few pieces were left behind, and we'd like to make arrangements to get those to you.

Friday, August 28, 2009

Please Keep Checking!

I must apologize! It's been entirely too long since I've posted an update on Allison's progress. I'm working on a fun post that includes information on Allison, more pictures, and a FANTASTIC video!

Allison was doing so well after Round 2 of chemo, that her doctor gave her the green light to head home this week. We don't know how long this visit will be, but we are enjoying being home as a complete family.

We're not quite sure what the next step will be because we are awaiting results from her bone marrow test, results should be in next week. The search is still on for a marrow match for her! If you have not already signed up for the National Bone Marrow Registry, please consider doing so! You just might save a life! Please follow this link to register by mail: www.join.marrow.org/friends2allison

Thank you all for your support and continued thoughts and prayers as we continue on this journey.

Warmest Regards,

Allison's Mommy

Saturday, August 22, 2009

Don't Forget...Benefit on Saturday!!

Allison's benefit dinner is on Saturday, August, 29th at Buchanan Arms in Burbank!!

Thanks OC Sheriffs

Just ran across the OC Sheriff's Blog, announcing a blood drive, featuring a bone marrow drive for Allison back on August 12th. Big thanks to all involved!

Deputy C.D. Vincent sent an e-mail to Team Allison..."We held the Blood Drive on August 12, 2009. During that time we had a representative from the National Bone Marrow Registry present. We had 44 people stop in and register for the Bone Marrow after seeing the story on Allison. I hope everything works out."

Friday, August 21, 2009

Just me and my shadow....

Well, it may not actually be her shadow, but Allison made friends with her reflection the other night. After playing and walking all day, she caught a glimpse of a little girl in a matching outfit! Check out the video as she talks to, dances with, and even tries to "high five" her reflection!

Tuesday, August 18, 2009

Another Successful Bone Marrow Drive!

120 new people are now on the bone marrow registry that were not on it a few days ago! Congrats to Kimberly Haim on such a successful bone marrow registry drive at her home in Sherman Oaks! Be looking for more bone marrow drives to be hosted by Kimberly...she is definitely an amazing woman.

For those of you that hesitate to do a drive in Allison's name, I say to you, "Host it, they will come!"

Monday, August 10, 2009

Save the Date: Sunday, September 27

Join Top of the Mountain for a bone marrow drive in honor of Allison Zicree on Sunday, September 27th! From 9 a.m. - Noon and resuming at 4 p.m. - 7 p.m.

Rolling Hills United Methodist Church
26438 Crenshaw Blvd
Rolling Hills Estates, CA 90274
(310) 377-6771

Bone Marrow Drive Success!

Thank you to everyone that attened the bone marrow drive at American Martyrs in Manhattan Beach! We had a total of 78 wonderful people that joined the registry on Sunday. Special thanks to Auntie Vaness and Uncle Ricky for representing the Zicrees, and Stephanie and Lori (and her rockstar team) from Be a Match. Also, Team Allison would like to thank Ann Karner for hosting us.

Coming up next...

Kimberly Haim's Home

Kaiser Permanente Woodland Hills

Friday, August 7, 2009

What a busy month! Join us for another blood drive!


For anyone who was unable to attend the blood drive and marrow testing in July, Kaiser Permanent in Woodland Hills will be hosting another drive on Saturday, August 22, 2009 from 10am - 7pm. We hope to see you there!

Monday, August 3, 2009

Save the Date: Saturday, August 29th



Seating is limited, please purchase tickets in advance.

If you're interested in purchasing tickets and/or donating items for the silent auction, please contact Leah Ventimiglia for more information: 818.620.8454 or LSV1979@aol.com.

Save the Date: Sunday, August 16th

Kimberly Haim will be hosting a Bone Marrow Drive on Sunday, August 16th, from 9 a.m. to 3 p.m. at her home in Sherman Oaks. If you haven't registered yet to be a bone marrow donor, here is your chance! Visit Kimberly and City of Hope at:

13470 Weddington Street
Sherman Oaks, CA 91401

Don't forget that American Martyrs will be having a drive this Sunday in Manhattan Beach!

Friday, July 31, 2009

Remission Status

At the start of Round 2, Allison was in a partial remission. This means that while her counts were low, they were not low enough to consider her in a complete remission.

She is enduring a second round in hopes that this will get rid of what is left. The search for a bone marrow match continues and we pray that we will find one soon! It is our hope and prayer that this round of treatment will put her in remission and that a donor will be found quickly so that we can move into the transplant phase of her treatment plan.

Thank you all for your continued thoughts and prayers as we continue on this journey.

Nicole & Shaun

(please read below for more info!)

Round 2 of Chemo almost complete!



Tomorrow is the final day of round 2 of chemo for Little Miss Allison. She has sailed through this session like a superstar! Inside her little body the chemotherapy is doing EXACTLY what it is supposed to do. On the outside she is acting every bit the toddler she is meant to be! She has learned the power of shaking her head "no"(but does not 'abuse' it!). She has mastered the art of making doggy sounds, clacking her tongue, and contorting her face into the perfect kissy fish face! She has taken 7 steps all on her own and now dances like Annette Funicello in Beach Blanket Bingo. Speaking of Annette...she even got her first pair of Mickey(Minnie) ears! Thanks Toni & Eric!

Although she is in good spirits overall, this round of chemo has brought more sleepiness, neediness(for extra snuggles), and fussiness that we've never endured before. She has been one tough cookie and is still surprising her doctor with her tenacity and happy-go-lucky attitude.

From the doctor:
“Allison has had a favorable response to the first course of chemotherapy for acute megakaryocytic leukemia,” says Susan K. Storch, MD, Chief of Pediatric Oncology at Kaiser Permanente’s Woodland Hills Medical Center.

“Her bone marrow examination results demonstrate a partial remission and she has now begun the next phase of chemotherapy. It is hoped that she will achieve a full remission in preparation for a bone marrow transplant, if a matched donor is found,” Dr. Storch continued.

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The search for a bone marrow match still continues. Thank you again to all those who participated in the drive at Kaiser Woodland Hills, and at subsequent drives around Southern California. The results from the drive(WH) should be put into the National Bone Marrow registry any day now and matched against Allison's type. Hopefully we will know more in the coming weeks!

August is going to be a busy month! Please check back tomorrow for updates on SFV area drives and even a fundraiser!

Warmest Regards,

Nicole - Allison's Mommy

Wednesday, July 22, 2009

Save the Date: Sunday, August 9

On Sunday, August 9th from 8 a.m. until 1 p.m. there will be a Bone Marrow Drive in Allison's honor at American Martyrs in Manhattan Beach. You don't have to be a parishoner, or Catholic for that matter to come and register to be a bone marrow donor. The process is easy, fill out the paper work and get your cheek swabbed.

American Martyrs
624 Fifteenth Street
Manhattan Beach, CA 90266

Let's make this drive as successful as last week's KP drive. Team Allison is so excited to have found out that over 800 registered as Bone Marrow Donors and 150 people donated blood at last weeks drive at Kaiser Permanente Woodland Hills!

Another drive at KP Woodland Hills is scheduled in Allison Zicree's name at the end of August.

Support Team in Training!

Carlos Pineda will be racing for The Leukemia & Lymphoma Society's Team in Training! He is a friend of Team Allison. He needs to raise $400 more dollars in 9 days for the race. Please support Carlos and his mission to make the impossible...POSSIBLE!

http://ironmancarlitos.blogspot.com/